Thursday, 23 April 2015

Tourette Syndrome + Co morbidity

My daughter Ashlynd was diagnosed at age five with Tourette Syndrome. It was two-edged news to us. Finally she was diagnosed with "something", but on the other hand, now she was finally diagnosed with "something".

Who new the steep hill we were about to climb for the next 7 years? Her tics were just the "tip of the iceberg". We had no clue of the co morbid disorders that would be attached to her TS, nor how present they would be in her every day life, nor that they would be even more crippling than her primary diagnosis.

 Readers know about our fight to find Ashlynd the appropriate doctors, therapies and medications, yet many may not understand that educating friends, family and teachers of her disorders has been just as difficult a task.

Here is part of an article about TS and its co morbid  "tag alongs":

Frequently, the symptoms of TS and it’s co-morbid conditions are seen as
“purposeful behaviors” not related to the disability at all, when at its very core, TS is really all about a lack of control. 
Read the full article here:
 http://tsa-illinois.org/wp-content/uploads/2012/05/Tourette-Syndrome-More-than-Just-a-Tic-Disorder-Understanding-TS-to-Advocate-for-Your-Child.pdf